Young Voices and young people with SEND

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Welcome to the Young Voices area.


What is this project all about?

Young Voices is about young people having a say, and working with services as the experts on their own lives. There are lots of different ways to take part; from online surveys, to our Youth Ambassadors Forum. If you can't find the information you need on this page, please do contact us and we'd be happy to help.

Who is it for?

We embrace all areas of additional needs, disability, neurodiversity and inclusion. Not everyone wants a 'label', and this is something we are respectful of.

Everyone is

Welcome to the Young Voices area.


What is this project all about?

Young Voices is about young people having a say, and working with services as the experts on their own lives. There are lots of different ways to take part; from online surveys, to our Youth Ambassadors Forum. If you can't find the information you need on this page, please do contact us and we'd be happy to help.

Who is it for?

We embrace all areas of additional needs, disability, neurodiversity and inclusion. Not everyone wants a 'label', and this is something we are respectful of.

Everyone is an individual; many young people who have taken part in our projects would not describe themselves as having 'SEND' (Special Educational Needs and Disability) .You do not need to have a diagnosis or Education Health Care Plan to take part.

What about access needs and other ways to take part?

If you have access needs that aren't catered for by what we have on offer here, please do contact us. We also have a Wiki micro website you may find useful, as it presents information in a visual and accessible way. It is very important to us to remove barriers to young people taking part, and we are always happy to learn from you about what works and what doesn't.

You certainly don't have to be able to speak and/or write to have something to say!

Perhaps you , or someone you know, communicates non-verbally, or communicates best through pictures, signing or symbols? We have virtual 'scrap books', and a sensory story project you might be interested in. You can take a look at some examples on the links on this page. If you'd like to be able to edit and add to our books, please use the form below to request access to this project.

If you feel that having a peer 'buddy' would support you to take part in our projects, please use the form below to express your interest in this, and we will get back to you.

Who do I contact if I need help?

Please contact Rachel.Sadler@westsussex.gov.uk, for more information, to discuss any access needs you might have, request information in different formats or anything else we can help you with.

What about parent carers?

The West Sussex Parent Carer Forum can help you with enquires about parent carer voice. West Sussex Parent Carer Forum website

Accessibility statement:

If you need this information in an alternative format, please contact us on 0330 222 6678 and rachel.sadler@westsussex.gov.uk. If you are deaf or hard of hearing and have an NGT texting app installed on your computer, laptop or smartphone, you can contact us on 18001 0330 222 6678.

We are committed making this website accessible, in accordance with the Public Sector Bodies (Websites and Mobile Applications) (No. 2) Accessibility Regulations 2018. West Sussex County Council has created an Accessibility Statement, and details about the general accessibility of the Your Voice Engagement Hub can be found by clicking on the 'Accessibility tab' right at the bottom of the page.

We are always looking to improve the accessibility of this website. If you find any problems not listed on this page or think we’re not meeting accessibility requirements, please contact us at haveyoursay@westsussex.gov.uk.

Data Protection/Privacy Notice

The SEND Commissioning team will use this questionnaire to collect personal and special category data the processing of which is necessary to enable us to be compliant with the law (general well-being duties), and for reasons of substantial public interest. The data will be processed in accordance with the 2018 Data Protection Act, the General Data Protection Regulations, and any subsequent data protection legislation. The data we collect be securely stored and kept for period of up to 2 years before being appropriately destroyed. The data we will collect will not be used for any other purpose than that stated above without your prior written consent. West Sussex County Council is registered as Data Controller (Reg. No. Z6413427). For further details and information about our Data Controller, please see www.westsussex.gov.uk/privacy-policy.

  • Have your say on new guidelines on services for children and young people with severe complex needs

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    NICE ( The National institute for Health and Care Excellence ) has written some guidance about how services should work for people with a learning disability and behaviour that challenges.

    They want to know what people think about it.

    The consultation closes on Tuesday 14 September 2021 at 5pm.

    You can find out more and take part on this link https://www.nice.org.uk/guidance/indevelopment/gid-ng10113/consultation/html-content

    Please note; NICE have asked for responses to be emailed to them on a form you can download on the link above. Please do contact them if you need help or have questions about the consultation . CYPseverecomplexneeds@nice.org.uk

    If you would like to comment below, please write your comments before Monday 13th September, to give us time to put any comments together into a response from West Sussex families and young people, and submit them to NICE.


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  • What would you write in a job advert for a support worker?

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    Imagine that you are advertising for a new support worker. What would this person need to be like to support you well? What skills would they have? Add your ideas to our chat board here https://padlet.com/rachelsadler/lkjvjb2iii375o0g or comment below .



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  • Write a customer review

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    We'd love to hear about times when you've had a really great experience of a service, to help us focus on what is important to young people when we are monitoring services.

    Who or what would you rate 5 stars and why?

    Write an online review on this link and tell us all about it https://padlet.com/rachelsadler/747zgerixzkrc8b7


  • What makes a good service for young people? Take our quiz.

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    The SEND Contracts and Commissioning Team want to hear from you about what you think makes a good service and how we can monitor this to make sure young people have a good experience . You can get involved by taking this short quiz or commenting below.

    https://kahoot.it/challenge/02257607?challenge-id=0565461e-a8ea-4a16-9e77-7be68aea9188_1628183430154



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  • The Tizard Centre - National research on safer online lives

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    Please note; we are sharing this on behalf of the University of Kent, who are running this research project. Please contact them directly if you have any questions about this project.


    The internet and social media have become a big part of many people’s lives.

    But we don’t know much about how people with intellectual disabilities use the internet and social media.

    We want to hear from adults with intellectual disabilities in the UK, and the people who support them, about the positive aspects and opportunities people with intellectual disabilities have when using the internet. We also want to find out the negative aspects and barriers people might come across when using the internet.

    We will do this in 3 steps:

    1. We will ask adults with intellectual disabilities to fill out a questionnaire about using the internet. We will ask family carers, safeguarding, and support staff to answer some questions on helping people with intellectual disabilities with using the internet
    2. We will invite adults with intellectual disabilities to talk about their online experiences in more detail. We will also hear from carers and staff on how they support people with intellectual disabilities with being online
    3. With permission, we will sit with people with intellectual disabilities and see how they use the internet and the safety steps they take.

    We will also be working with Kent’s School of Computing to develop a mobile app.

    To find out more please go to the website https://research.kent.ac.uk/tizard/safer-online-lives/


  • CAMHS Inpatient Mental health consultation

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    Please note; Young Voices are sharing this on behalf of NHS England, please contact them directly with any questions or comments.

    Improving Children and Young People's Mental Health Inpatient settings.

    NHS England wants mental health inpatient units for children and young people to improve and become the best they can possibly be. They want to make sure that their inpatient services offer safe, high quality care which is useful, and given at the right time.


    During 2021 Common Room will be reaching out to children and young people across England who have lived experience as service users of CAMHS inpatient units. We want to hear about issues related to being an inpatient so that NHSE can learn from first-hand experiences.


    • Are you 14-20 years?
    • Have you stayed in a mental health inpatient setting within the last two years? (e.g. CAMHS/ The Priory?)
    • Interested to find out more and get involved? Please contact us through this form.


    All the young people who take part will be able to claim a payment as thanks for spending their time giving feedback.


    https://www.commonroom.uk.com/NHSEinfo





  • New tools for talking about working with your social worker

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    We are collecting your views on what you like about working with your social worker. Share your thoughts on our ideas wall. Click on the button on the right labelled 'Working with my social worker' to find some activity sheets to get the conversation started. All your ideas and comments will show social workers just how important their job is, and give them some top tips on what works well for you.

  • Horsham picnic

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    Thank you to everyone who came to our picnic in Horsham on July 8th. We enjoyed the fresh air, games, snacks and having a chat. We talked about some of our interests, places we like to go , and things we like to do. Take a look at our word cloud to see what we said...

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  • Apply to join the National Children's Bureau Advisory Board

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    This is a national opportunity run by the National Children's Bureau.


    Due to the current coronavirus pandemic, we cannot meet up as groups as usual for the time being. However, we are looking for new members now and then will be resuming our face to face meetings soon!


    YNCB Advisory Group

    The YNCB Advisory Group is made up of children & young people (11-24) who get together to help decide and plan what work Young NCB does, including the issues it deals with and the activities and events it organises. Being a member of the Advisory Group is an excellent way of getting your voice heard and representing the views of other YNCB members.


    Young Research Advisors

    The YNCB Advisory Group is made up of children & young people (11-24) who get together to help the NCB Research Centre as well as other Research Centres from around the country to come up with ideas for surveys, test out interview questions, understand research findings, organise events, present at conferences and spread the word about the research findings through films and animations.


    Both groups meet 6 times a year and the young people will need to be able to travel to London to share their experiences, give feedback and advice, and also talk to professionals about how to make positive changes to improve things for young people. The young people don’t have these skills already, they’ll develop them in the group! We will cover the cost of all travel and expenses so it won’t cost a penny!


    Please download the application form which has more information on it and explains how to apply.


    We accept video applications or you can call us to arrange a time to talk to us.


    Young people are welcome to apply for both groups, however they will only be able to join one group.


    Please email all applications to Hope at hcapurro@ncb.org.uk by 5pm Monday 14th June 2021.

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  • Autism awareness week March 2021.

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    Join us on this hub, and on social media for World Autism Awareness week. Find out what our Young Voices forum members have to say about their experiences of autism, and learn about what Autism is all about from the experts ( that's autistic young people!) . You can also add to our Padlet board through out the week on this link https://padlet.com/rachelsadler/jx2aktbt1n7qubl3


Page last updated: 30 Jun 2022, 01:15 PM