Who are the Young Voices forum?

    The Young Voices Forum was created in 2018 and is supported by, the WSCC SEND Participation Lead. Members are aged 14 to 25, and have a range of needs, skills and talents. 

    Some young people in our group would describe themselves as living with a disability or as a disabled person, others would describe their needs differently, or prefer not to give themselves any particular ‘label’. We very much include neurodiversity and social, emotional, and mental health needs within the ‘umbrella’ of our group. All our members feel that young people having a voice is important, and are ’experts by experience’, who use services in West Sussex. 

    We work with services on improving things for young people and their families.  We have hybrid, fortnightly meetings on Zoom/in Person in Worthing.

     The capacity for this group is 12 members. It is open to ages 14 to 25. We encourage young people to join us, and if we reach our full capacity for our group meetings we would look at splitting the group. 

    What does SEND mean?

    'SEND' stands for 'Special education needs and disabilities'.

    Who can take part in this project?

    We are for all young people with SEND (Special Educational Needs and / or Disabilities) up to the age of 25 years old who live or study in West Sussex.

    People have their own identities and ways to describe themselves, and we respect that. Not all young people who take part in our projects would describe themselves as having 'SEND'. For example, some people might use the word 'neurodivergent' to describe themselves. For more information about neurodiversity, please visit the Brain Charity website explainer on neurodiversity (opens in a new tab)(External link).

    You do not need to have a diagnosis or Education Health Care Plan (EHCP) to take part.

FAQs for Young People

    What is the age range?

    What is the age range? 

    Projects where young people can submit their ideas are open to young people of school age up to age 25. We recognise that for younger children and those with communication needs, they may need considerable parental support to take part.

    Our online sessions are suitable for 11 to 25 year olds, with young people placed into smaller groups by age where appropriate .

    Some of our projects are aimed at young adults aged 16 to 25s. We call these our 'youth ambassadors' projects. 

    Can any young person with SEND take part? Do you have 'eligibility criteria'?

    Young people must live and/or study in West Sussex, and have an additional need. 

    Young people do not need to have an EHCP, be on their school/college’s SEND register or have a diagnosis to take part. 

    If you are not sure whether our projects are something you feel is for you, then please do contact us for an informal chat. 

    Young people with a physical disability and/or a sensory impairment, are particularly under-represented in our current membership, and we would especially like to hear from you if you have lived experience in this area. 

    If you are interested in your child/young person joining the forum please email lauren.boal@westsussex.gov.uk or sign up online 

    What do children and young people get out of taking part?

    The top thing young people have said they really value about taking part in our projects is the boost it gives to their confidence. We focus on supporting young people’s employability and life skills through regular   skills building  such as giving a good presentation, making a good first impression, working in a team and being assertive. There is also a social side to taking part. We hold half termly social sessions for young people taking part in our projects; a chance to meet new people, and socialise in a supported way . Some young people have made lasting friendships and connections with others. We recognise young people’s contributions and achievements with certificates and gift vouchers. Young people are also offered the opportunity to work towards a Youth Achievement Award, and some have even used our projects as part of their Duke of Edinburgh Award programme.  

    How will you support my needs, so I can take part?

    Our  monthly meetings currently take place over Zoom. We use visual ways to record our ideas and support understanding, and alternative methods of communication are very welcome at our meetings. 

    We do ask you to let us know if you have any particular communication needs when you sign up for sessions or events, so that we can make sure you are included fully. 

    Using video calls has pros and cons for inclusion and accessibility, and we are still getting used to this, picking up tips along the way, so please do help us to learn what works for you.

    Not all young people find group discussions accessible or enjoyable. Some prefer to communicate with us by email, text or phone calls, rather than joining group calls. This is something we are always happy to arrange, and time is set aside time to do this one to one support if needed. 

    There are also ways you can take part that don’t require verbal communication or literacy skills, such as online scrap books. These ways of taking part often need support from parent carers, and this is hugely appreciated, as we know how busy family life can be! Please do contact us for support to access these if needed. 

    What do you offer in person/face to face?

    We have hybrid meetings every fortnight on Thursday. The in person element is currently in Worthing and the online option uses Zoom. 

    We know that West Sussex is a very big county and we don't want distance to be a barrier to taking part. If you want to take part but distance is an issue, please get in touch as there are many ways to take part.  

    We also offer in person social and activity days, usually in school holidays . Many of our members find this is a good way to get to know us and start taking part in a relaxed way. 

    What do you do with my comments and outcomes from these projects ? How will taking part make a difference?

    It is important that you understand how the information you give us is used. Please see our privacy statement for details on how we process personal information. Your ideas, comments and work will be shared within West Sussex County Council, and may be shared with other relevant public bodies such as the NHS or other local authorities to improve services. We will never use your name, photos or any other personal details that could identify you, unless you give us your express consent. 

    What young people tell us is heard by the Children First Board and the SEND and Inclusion Forum. These are all boards that focus on improving the services that children and young people use. It really does make a difference for decision makers to hear from real young people about their lives, experiences, hopes and dreams. We are always striving to be person-centred, and to do this we need to give young people a seat at the table. 

    In a more practical, visible way, we look for small changes that can make a big difference by asking young people what matters to them.  

    We ask all services we work with to give us clear feedback on what they will do with the information young people have given them, and what changes we can expect to see as a result of our input.

    What if I don’t have access to the tech I need to take part?

    Most of our online workshops and meetings work best on a tablet, PC or laptop.

     We appreciate that for many families, a smart phone may be the only shared device in the household, and not everyone has internet access. 

    If this is a barrier to you taking part, please contact us. There are organisations that may be able help, and we are happy to pass on their details to you.

    What about digital safety when taking part ?

    We have risk assessments and procedures in place to ensure that this is done safely. 

    Any social media groups are monitored by staff, and are closed groups, which means that they are private and invitation only. 

    Any inappropriate activity, including bullying, will not be tolerated. No personal details will be shared, and young people are always asked to take part using their first name only. 

    Young people have told us that Zoom is their preferred and more familiar platform for group chats and calls. 

    These meetings are all pre-scheduled and no ‘ad-hoc’ video calls are able to take place between members of the group and/or staff. 

    Young people’s contact details to invite them to online events and calls are held securely. 

    Young people are always asked to register ahead of these online events and meetings, and we will never admit someone until we know who they are.

    Do you work with over 25s?

    As our work is based in Children and Young People’s services, we do not work with anyone aged over 25. For young adults who are working with us and turning 25, we will support them to plan for moving on from us to other opportunities locally.  

    You can find out about activities, clubs, and support for adults here Connect to Support website

    I'm a Parent/carer, how do I know my child is in safe hands?

    All our staff have Enhanced DBS checks and are employed by WSCC to work directly with Children and Young People. 

    Our staff have varied backgrounds in youth work and education and the SEND lead, has many years of experience in working specifically with children and young people with additional needs and SEND, including using AAC. 

    You are welcome to arrange a discussion with staff to ensure that you are confident in our abilities to support your child and answer any questions you might have. 

    I'm a Parent/Carer, is there a similar group for me?

    The West Sussex Parent Carer Forum can help you with parent carer voice. Link to West Sussex Parent Carer Forum website (opens in new tab)